ALS has devastating financial implications for patients and their families. Due to the debilitating nature of the disease, most people diagnosed with ALS lose their jobs and employer-based insurance during the most challenging periods of their lives. This
burden is compounded by the requirement that people with ALS must wait five months before they can receive the Social Security Disability Insurance (SSDI) benefits that they have earned.
The SSDI five-month waiting period is intended to be long enough to allow temporary conditions to reverse and to discourage those who can work from electing to not work. But as ALS patients and their families know, ALS is never temporary or reversible. In
fact, because of its degenerative and aggressive nature, some people living with ALS will lose their fight with the disease before the five-month waiting period has even ended.