Keep Our Genes Private: Support the Genetic Information Privacy Act of 2019

Whether it is to learn more about their ancestry or their predisposition to disease, every day, U.S. citizens send their genetic information to testing services.  But
many U.S. citizens are unaware of what happens to their genetic information after they send it in.  Services that conduct genetic tests on consumers receive a wealth of genetic information that includes both intimate and personally identifiable information. 
These services are then able to sell their consumers’ data to third parties without their consent.

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Cosponsor the RARE Act, endorsed by 140 patient groups!

Please join Rep. Richard Hudson (NC-R-8) and I and become a cosponsor of the
Rare diseases Advancement, Research, and Education (RARE) Act (H.R. 4228) in the 116th Congress. This bipartisan bill will expand the ability of the National Institutes of Health (NIH) and Centers for Diseases Control and Prevention (CDC)
to study rare diseases by improving treatment, research, and diagnostics of rare diseases through new and existing programs. This legislation has been endorsed by 140 patient groups.

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DEADLINE EXTENDED: Support Action NOW on the LWCF Permanent Funding Act (H.R.3195)

Please join us in sending a letter to Speaker Pelosi and Leader Hoyer urging immediate action on H.R.3195, the Land and Water Conservation Fund Permanent Funding Act. Passage of permanent reauthorization in March 2019 was a huge victory for the Land and
Water Conservation Fund (LWCF), America’s most important conservation and recreation program. Now is the time to build on this positive momentum and guarantee the program’s funding as well.

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Letter to CDC Urging Use of Rapid HIV Self-Testing in its “Ending the HIV Epidemic” Initiative

Please join me in sending a letter to the Centers for Disease Control and Prevention (CDC) regarding its initiative,
Ending the HIV Epidemic: A Plan for America. This initiative will work with communities in 48 counties throughout the United States, San Juan, and Puerto Rico, as well as 7 states with substantial rural needs to end the HIV epidemic. The initiative’s
goal is to achieve a 75% reduction in new HIV infections within 5 years and a 90% reduction within 10 years. Reduction is only possible with early diagnosis, treatment, and prevention.

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Co-sponsor the “Survey Our Military Impacted Schools Act”

Of the more than 1.2 million school-aged children of servicemen and women, more than
80 percent attend public schools. Virtually all school districts educate a child whose parent or guardian is serving in our Armed Forces, whether stationed here or abroad and whether on active duty or in the National Guard or Reserves. 

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