DearColleague.us

Letter

Jason Crow

From the office of:

Jason Crow

Sending Office: Honorable Jason Crow
Sent By:
Santiago.Gonzalez@mail.house.gov

Join the ALS Caucus

Co-chairs include Representatives Jason Crow (CO-06), Brian Fitzpatrick (PA-01), Terri Sewell (AL-07), and Ken Calvert (CA-42).

How We’ll Cure ALS

An estimated 1 in 15 adults alive today – 135 million people – will be diagnosed with a neurological disease. Of these, Amyotrophic Lateral Sclerosis (ALS), which is always terminal, is the fastest progressing. By producing a cure for this debilitating and
relentless disease, we’ll not only eliminate the suffering of hundreds of thousands of patients, caregivers, and families, but also help eliminate dozens of other diseases such as Parkinson’s, Alzheimer’s, Multiple Sclerosis, Frontal Temporal Dementia and
Huntington’s that are scientifically linked to ALS.

The ALS Caucus is a bipartisan group of ALS’ most engaged champions on Capitol Hill. Many have been personally impacted by the disease, and all have been moved by the strength and energy of the ALS community.

 

Impact of ALS

  • A diagnosis of ALS means death. Every four minutes, someone is diagnosed with ALS
    and someone dies from ALS.
  • ALS’ growth is accelerating. ALS diagnoses are expected to rise by 69 percent by 2040.
  • ALS disproportionately impacts veterans. Military veterans are twice as likely to die from ALS as the general public.

 

Our Mission

The ALS Caucus will bring together Members of Congress from both sides of the aisle to share experiences, exchange ideas, and work collaboratively to find a cure for ALS. By raising awareness about the challenges faced by ALS patients and their families,
thinking creatively about policy solutions to reduce the negative impacts of ALS, and investing in groundbreaking research we will find a cure. Together.

 

Joining the ALS Caucus Will

  1. Link into an active network of constituent advocates
  2. Raise critical awareness for the disease and other neurological conditions
  3. Help generate impactful press opportunities for its members to raise awareness for this fight

 

Please contact Santiago Gonzalez (Santiago.gonzalez@mail.house.gov) with Rep. Crow to join.

Related Legislative Issues

Selected legislative information: Appropriations, Family Issues, HealthCare, Science, Veterans

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