Sending Office: Honorable Gus M. Bilirakis
By now your office should have received the invite below to a rare disease caucus briefing –
Wednesday, May 15th from 11:30-1:00pm in Dirksen G-11.
For more information on this event and to RSVP, please contact
Shannon von Felden at email@example.com.
Gus M. Bilirakis
Disease Legislative Advocates in cooperation with Representatives G. K. Butterfield (D-NC) and Gus Bilirakis (R-FL) and Senators Roger Wicker (R-MS) and Amy Klobuchar (D-MN), Co-Chairs of the Rare Disease Congressional Caucus, invite you to a Rare Disease
New Technologies and Treatments for Rare Diseases
Wednesday, May 15, 2019, from 11:30 a.m. until 1:00 p.m.
Dirksen Senate Office Building, Room G-11
Complimentary lunch included
Moderator: Daryl Pritchard, Ph.D., Senior Vice President of Science Policy, Personalized Medicine Coalition
George Church, Ph.D., Professor of Genetics, Harvard Medical School
Gary Gibbons, MD, Director, National Heart, Lung, and Blood Institute
Stan Nelson, MD, Duchenne Care Center, University of California Los Angeles
Tesha Samuels, Sickle Cell Disease advocate and participant in NIH clinical trial
Please RSVP for this briefing to Shannon von Felden, RDLA Program Manager, at
This briefing is a free and widely attended event.
e-Dear Colleague version 2.0