Sending Office: Honorable Debbie Wasserman Schultz
Sent By:
Jacquelyn.Wang@mail.house.gov

Staff Roundtable: World Psoriasis Day

Monday, October 29, 2018

1-2PM

121 Cannon

Light refreshments provided

Dear Colleague:

On October 29th, we will commemorate World Psoriasis Day, which recognizes the impact of psoriasis and psoriatic arthritis, the voices of those affected by these diseases, and the need to develop a cure.

In collaboration with the National Psoriasis Foundation (NPF), I invite you to learn more about a disease that has affected an estimated 125 million persons globally, including more than 8 million in the United States. The roundtable will feature the following
experts:

  • Dr. Lawrence Green, NPF Medical Board
  • Sarah Truman, NPF Patient Advocate
  • Jessica Nagro, NPF Federal Government Relations & Health Policy Manager

The event will be an informal discussion about the issues surrounding psoriasis and next steps that Congress and legislators can do to address this disease.

Light refreshments will be provided. Staff and interns are welcome. Please RSVP to Jacquelyn Wang at
Jacquelyn.Wang@mail.house.gov.

 

Sincerely,

 

Debbie Wasserman Schultz

Member of Congress

 

Background on Psoriasis:

Psoriasis is a chronic, immune-mediated disease that presents on the skin and joints. In addition to raised, red, scaly patches that appear on the skin, up to 30 percent of individuals with psoriasis may also develop psoriatic arthritis. Treating and managing
psoriasis is particularly challenging in developing nations for multiple reasons including a lack of understanding about the disease, stigmas, and a lack of accessible treatments. Psoriasis can affect persons of any age and there is currently no cure for the
disease.

In the United States, persons impacted by psoriatic disease navigate a number of challenges that impact their ability to work and live full and robust lives. Many persons with psoriatic disease face challenges in obtaining timely and affordable access to
treatments prescribed by their physicians. Barriers to care can lead to a further deterioration of health and the need for more intensive—and more costly—healthcare interventions. While there are ongoing psoriasis-related federal initiatives, including $18
million in funding at the National Institutes of Health in fiscal year 2018 and the publication of a Public Health Agenda by the CDC, there is still much more to be done to help improve the lives of those with psoriatic disease and advance a cure.

Related Legislative Issues

Selected legislative information: Government, HealthCare

icon eDC logo e-Dear Colleague version 2.0
 
e-Dear Colleagues are intended for internal House use only.