Sending Office: Honorable Adam B. Schiff
DEADLINE: COB Friday, March 2
Endorsed by Project Sleep and the Health and Medicine Counsel of Washington
: Davis (CA), Holmes-Norton
As you may know, the National Center on Sleep Disorders Research (NCSDR) coordinates research into sleep, circadian, and sleep disorders across the National Institutes of Health (NIH). Over recent years, NCSDR has helped facilitate significant scientific
progress in the sleep research portfolio, most notably in 2017 when NIH-supported scientists won the Nobel Prize in Physiology and Medicine for work in this area on the body’s biological clock. Please join me in recognizing NCSDR for its leadership in this
area while also requesting meaningful feedback on the status of research in sleep disorders, particularly narcolepsy.
Narcolepsy is a chronic neurological disorder in which the brain loses the ability to maintain normal sleep and wake states. There is no cure and treatment options are limited. Narcolepsy can be disruptive and debilitating; with symptoms that include extreme
sleepiness, sleep paralysis, cataplexy (a sudden inability to move), and hypnagogic hallucinations. It is estimated that narcolepsy affects roughly 200,000 Americans, including children.
Please join me in sending the following letter to NCSDR requesting a specific update on the size, scope, and direction of the narcolepsy portfolio. We hope to learn how the narcolepsy portfolio is progressing at NIH and how basic, translational, and clinical
research opportunities are being leveraged to ensure that breakthroughs in basic science become therapies and tools that improve the lives of affected individuals. With this information we can better support the work of NCSDR and ensure that our affected constituents
continue to see healthcare improvements.
To sign on to this letter, please contact Anthony Theissen in my office at Anthony.Theissen@mail.house.gov or 5-4176 by COB Wednesday, February 28. Thank you for your
time and consideration of this request.
Congressman Adam B. Schiff