Sending Office: Carson (IN), Andre
We invite you to join us in sending a letter to leadership urging support for formally designating February 28 as Rare Disease Day, and for addressing the unique challenges facing the rare disease patient community.
Rare diseases affect nearly 30,000,000 individuals nationwide, and each year these individuals and their families celebrate Rare Disease Day to share their stories and educate their communities. Pending legislation (H.Res157) would formally designate February
28 as Rare Disease Day.
André Carson Michael McCaul