DearColleague.us

Letter

Mark Pocan

From the office of:

Mark Pocan


Sending Office: Honorable Mark Pocan
Sent By:
Leslie.Zelenko@mail.house.gov

Join Reps. Gallagher, Pocan and Gutiérrez for a Briefing on the Importance of the DoD CDMRP to Find Cures for Neurofibromatosis (NF) and Beyond

Friday December 1, 2017

1:00-2:00 p.m.

CVC Congressional Meeting Room South

Dear Colleague,

Currently, there are no effective treatments and no cure for neurofibromatosis (NF), a genetic disorder affecting 1 in 3,000 people. Through research conducted by the NF Research Program within the CDMRP, research at the National Institutes of Health (NIH),
and other public and private research partnerships, we know we will find solutions for NF patients as well as 175 million Americans suffering from traumatic brain injury, cognitive delays, various cancers, persistent pain, nerve damage and amputations.

Please join us for a briefing in collaboration with the Littlest Tumor Foundation on the value of the CDMRP to finding treatments for NF and other deadly diseases.

 

Who:

  • Naba Bora, PH.D., Neurofibromatosis Research Program at Department of Defense CDMRP
  • Jill Morris, PH.D, Program Director, Neurogenetics at the National Institute of Neurological Disorders and Strokes (NINDS)
  • Annette Bakker, PH.D., President and Chief Scientific Officer, Children’s Tumor Foundation
  • Lynn Black & Gregg Erickson: NF Parent and NF Network 

When: Friday December 1, 2016 at 1:00 p.m. 

Where: CVC Congressional Meeting Room South 

Refreshments will be served. We look forward to seeing you there.

 

Sincerely,

Mark Pocan

Member of Congress

 

Related Legislative Issues

Selected legislative information: Appropriations, Armed Services, HealthCare, Science

Related Event Information

Event Location: Congressional Meeting Room South
Event Start: 12/1/2017 1:00:00 PM
Event End: 12/1/2017 2:00:00 PM

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