Sending Office: Honorable Barbara Lee
Sent By:
M.A.Keifer@mail.house.gov

        Request for Cosponsor(s)

Cosponsor a Resolution Calling for Sickle Cell Trait Research

Deadline for Original Cosponsors: 10:00 AM Tuesday, September 26

Supported by: American Society of Hematology, Sickle Cell Disease Association of America, American Society of Gene & Cell Therapy, American Public Health Association, and Association of Public Health Laboratories, The Foundation
for Sickle Cell Disease Research

 

Dear Colleague:

We write to encourage you to become an original cosponsor of a resolution calling for research that expands our understanding of the implications of Sickle Cell Trait (SCT).

September is Sickle Cell Awareness Month. Sickle Cell Disease (SCD) is the most common inherited blood disorder in the United States, affecting approximately 100,000 Americans. Although SCD is a relatively rare condition, Sickle Cell Trait (SCT) is not.
 The Centers for Disease Control (CDC) estimates that at least 3,000,000 Americans have SCT, many of whom do not know their status. People who have SCT usually do not have any of the symptoms of SCD, although the trait can be passed on to their children. The
CDC estimates that SCT affects 1 in 12 African Americans and 1 in 100 Hispanics in the United States, however, the trait has also been found in persons of Greek, Italian, East Indian, Saudi Arabian, Asian, Syrian, Turkish, Cypriot, Sicilian, and Caucasian
origin.

There has been a growing interest in understanding the health implications associated with SCT and increasing people’s awareness regarding their SCT status. The simple truth is that our understanding of the environmental and genetic factors associated with
SCT and its health outcomes have been limited and inconclusive. There also continues to be a lack of systematic protocols in place to inform parents of their child’s SCT status after a newborn screening and there is no evidence that demonstrates this information
is being accurately disseminated to a child before reaching their reproductive years.

That is why we encourage you to join us in cosponsoring a resolution encouraging support in SCT research to ensure access to screening and appropriate counseling for carriers of SCT and to increase understanding of the implications of SCT. The resolution
also calls for the development of a public awareness campaign to encourage more people to know their SCT status.

If you have any questions or would like to cosponsor, please contact Keifer in Congresswoman Barbara Lee’s office at
m.a.keifer@mail.house.gov ext. 5-2661 or Edward Kim at
Edward.kim@mail.house.gov in Congressman Michael Burgess’ office, ext. 5-7772.

 

Sincerely,

Barbara Lee

Member of Congress

Michael C. Burgess, M.D.

Member of Congress

Related Legislative Issues

Selected legislative information: HealthCare, Science

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