DearColleague.us

Letter

Mark Pocan

From the office of:

Mark Pocan

From: The Honorable Mark Pocan
Sent By: Leslie.Zelenko@mail.house.gov
Date: 11/30/2015

Join Reps. Ribble, Pocan and Gutierrez for a Briefing on the Importance of the CDMRP to those with Neurofibromatosis (NF) and Beyond

 

Friday December 4, 2015

1:00-2:30 p.m.

2253 Rayburn House Office Building

 

Dear Colleague,

Currently, there are no effective treatments and no cure for neurofibromatosis (NF), a genetic disorder affecting 1 in 3,000 people. Through research conducted by the NF Research Program within the CDMRP, research at the National Institutes of Health (NIH), and other public and private research partnerships, we know we will find solutions for NF patients as well as 175 million Americans suffering from traumatic brain injury, cognitive delays, various cancers, persistent pain, nerve damage and amputations.

Please join us for a briefing in collaboration with the Littlest Tumor Foundation on the value of the CDMRP to finding treatments to NF and other deadly diseases.

Who:

  • Roger Packer, MD, Head of the Brain Tumor Institute at Children’s National Medical Center
  • Naba Bora, PH.D., Neurofibromatosis Research Program at Department of Defense CDMRP
  • Jill Morris, PH.D, Program Director, Neurogenetics at the National Institute of Neurological Disorders and Strokes
  • Annette Bakker, PH.D., President and Chief Scientific Officer, Children’s Tumor Foundation

When: Friday December 4, 2015—1:00-2:30 p.m.

Where: 2253 Rayburn House Office Building

 

Refreshments will be served. We look forward to seeing you there.

Sincerely,

Mark Pocan

Member of Congress